My Sweet Samuel literally "up a tree" - Due to his autism, his senses are acute & he processes differently than I do.
Sometimes I wish I could step into my son Samuel’s body so I
could experience the world through his senses and his thoughts for a day or so.
I would think of it as a version of a highly conscious unfreaky Friday.
I know his senses are heightened and I know he has anxiety.
I know his language processing is different, but I wonder how different?
Maybe there were moments yesterday that felt like he feels.
Yesterday I had a
sense of foreboding. This is not an uncommon feeling since my cancer diagnosis.
My affect was flat, each movement felt like a bigger
commitment than I could manage. I went
to Emma’s school to drop off her change of clothes after a choir gig and every
step was a marathon. I found my way into her choir room and then, I had to find
her. I looked here and there and I rounded a corner and there she was, sitting
in a circle with a group of friends, talking and happy.
They stopped talking when they saw me. Emma leaped up and
hugged me, saying, “Mommy, you’re the best.” She couldn’t tell how close I was
to crying. When I mentioned it later I said, “It is so weird, I feel like I
need to cry but it isn’t like there is any sort of reason for it, I just want
to cry.”
I attempted to explain it to a friend, this feeling of
anticipation of rather than the best is yet to be, the worst is ready to drop
on my head at any moment.
I tend toward the optimistic perspective. Pollyanna is my
friend. I was writing gratitude lists long before everyone else jumped on the
bandwagon, but I have also come to know there is occasionally a tipping point
that happens, that final nudge that pushes you off the, “Oh, yeah, I’m doing
decently” ledge.
One of my primary areas of focus in 2013 is rebirthing my
creative life coaching and personal development business. I have done very well
in the past, but during my variety of lifetime movie themed situations, I let
go of developing my business. This Fall, with my Melanoma and surgery and
recovery, I haven’t taught any classes for my own business although I did
continue doing contract and freelance work at the barest of minimums.
I said to my friend, “I think I have tapped into a very
specific and quietly insidious part of my fear. Somehow I believe if I get as
successful as I was before my avalanche of crises happened, I will have another
avalanche of crises. There are no promises this one wouldn’t bury me,” I said,
recognizing the whole time how ridiculous this sounds and how contrary to the
way I speak, write and know much of the time.
One example was having constant fear for whatever Samuel may
be encountering at school on any given day. I told my friend, “When he was in
kindergarten they called me sometimes several times a week, asking me to take
Samuel home because of some problem or another.” I paused. “It isn’t as bad now,
but I am always on alert….especially after the troubles in fourth grade.”
Later in the afternoon my phone rang. It was the principal
saying Samuel had been involved in an altercation and there were two other boys
involved who not only got sent to his office, they got suspended for a couple
days. He reiterated Samuel did nothing wrong, but he wanted me to know so I
could see if Samuel would talk to me.
There was only one other time Samuel had a situation arise similar
to this and it caused the other student to be suspended for five days.
This is the reality of his life. I can’t protect him
twenty-four hours a day. We have chosen main streaming specifically because I
don’t want him to be stuffed into a special ed ghetto where he is separate from
all the neurotypical kids. He is smart enough to go to college and get a job
someday where not everyone will be a person with autism. He needs to know how
to relate to all people, even those who are rotten to him.
The other kids need to learn to befriend unique children.
They need to learn the world is made up of many different forms and versions of
human beings, not just Jane or Joe Average.
He also needs to have allies: teachers, principals, other
students who are friends with him who actually like him.
I picked Samuel up from his after school program and he was
in a great mood. He was happy and pleasant.
I thought, “Maybe he feels cared for by the Principal since
Samuel knew the Principal “had his back” so Samuel would feel safer.” I’m not
sure, but now that I know I will be able to talk to Samuel about it. My fear of
Junior High has now increased, but my trust in his current school has also
increased. The Principal has a new plan to insure there won’t be a repeat of
this situation involving personnel being involved in monitoring the playground
more effectively.
For the meantime, I need to remember I get to choose how I
respond to situations that
threw me so far off kilter when I set aside my
business the last time because of crises in my personal life. I can choose to
not be upset by it and calmly look at the facts as the intelligent woman I know
I am.
Today, my mood is much better. There isn’t concrete in my
feet. I don’t feel like I am about to burst into tears. I am taking care of
myself well.
Sometimes I wish I could step into Samuel’s body so I could
experience the world through his senses and his thoughts for a day or so. It
would be a conscious sort of unfreaky Friday.
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© 2012 by Julie
Jordan Sc
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