I usually write my Best Blog 2009 Challenge entries in the morning, early on, but today I had to go visit my son’s school and visit his classroom. It is relevant to the topic which is why I bring it up at all.
Two years ago my son was diagnosed with autism after a long, unwieldy journey through kindergarten. I thought he was just very logical and on the path to being an engineer. I mean, my Dad doesn’t talk much and look how nice and orderly Samuel always was: putting everything in rows and making sure everything was the same, day after day.
I didn’t know autism could HAVE a high functioning version.
The school tried to tell me I was a bad parent and Samuel was just a disobedient, bad mollycoddled child. Nope. It was neither of those and they should have known better and therein lies the crux of one of my biggest challenges of the past two years: getting Samuel the education he not only needs but that he is guaranteed by law to receive no matter what his disability.
I pulled him out of school and the fight (cough, spew) I mean advocacy began.
I didn't realize how much of an adversarial relationship educators could have with parents. I had dream children - until now. Don't get upset, this was me thinking two years ago. My daughters were both ridiculously smart. Both scored high on the coveted tests, were leaders in academics and the arts. How could I have botched up my son so badly?
Educators sneered down their noses at his Autistic Spectrum diagnosis. The Speech Therapist sat next to my son and told me, "This isn't a disability, Julie, this is a brat." When I called her boss to complain, he told me there was nothing he could do.
I could go on and on but that story always makes me too mad so I will stop.
Samuel went back to school and despite bumps and bruises, I built positive relationships with school administration and I am even an officer with the SELPA (Special Educational Local Plan Area) Community Advisory Committee. I make myself visible so that I have a voice for children, not only mine.
I never want what happened to Samuel happen to other children. I am giving you the Reader's Digest version here, but believe me when I say it was worse than hell.
Fast forward to now and it is like my friend, Coryn, said when I texted her the news after my classroom visit, "All your hard work has paid off!" He is currently in a General Education classroom most of the day and a Special Ed classroom for two hours a day. I want him to be mainstreamed in the Gen Ed classroom all day, but even as I wanted it, I was afraid of it. The trip to school today was to see first hand how he was doing.
He is doing just like all the other "normal" third graders. He was participating, excited and even called me a “helicopter parent”. He was appropriately bugged that I was there in the classroom. When I was in the Special Ed class, it was not a bad thing, When I was with the “normal kids” and he was a “normal kid”, my presence wasn’t appreciated.
I was so happy he didn’t want me there! He will start full time in the Main Stream class room beginning in the New Year, making the Special Ed classroom as a support, only. I may ask for some RSP help or something and some Language therapy that goes beyond playing board games. He still struggles with oral language from time to time.
So now it looks like I can actually stop being hyper-vigilant or be vigilant in a different way.
Wow.
It will give me the chance to work on my secondary Biggest Challenge – which is to for once-and-for-all climb out of (what I call) the Bullsh*t Jungle. I use that term with my students – especially writing students…. You know, the place where you hide from yourself and talk a lot of Bullsh*t to avoid talking (or writing) about the truth?
I was talking about it yesterday in a class I am teaching and I realized, “Holy Moly! I am describing myself when it comes to taking action in this one particular arena!”
So – my intention for NEXT Year’s Best10 is to say “I have moved out of The Bullsh*t Jungle and I have thrown away the key!”
Feels good seeing it in “print”……
And if any of you would appreciate information about educational advocacy or support in relationship to the Autistic Spectrum, please feel open to emailing me or talking with me about it.
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